If You Are The Praying Type

[TreeDaddy]

The Chief Surgeon, the one who actually did our daughter’s procedure, came up to visit us today. He is going to personally take back over her treatment plan. We had a nice long talk. He had handed off her care to the surgical clinic and is unhappy with our progress. We have the surgical team suggesting we care for the wound one way which requires her catheter to be in, wound care redressing it and saying urine won’t hurt it, urology suggesting she could have a catheter the rest of her life, etc. He is the kind of guy that makes stuff happen. He is going to get everyone in the same room, actually in the same room and they will come up with a cohesive plan. He is personally going to see it through. It does seem that one of the internal stitches has come loose. I will spare you the details, but during one diaper change earlier this week, I got a perspective of the wound that made me vomit immediately. I’m sure the fact that it was my daughter contributed to that greatly. He suggested to us that what wound care did looks great. He is impressed with what they accomplished here in our room without going back to the OR. He also says her being on a catheter forever is nonsense. He is going to suggest they remove the catheter and simply wait for her to pee. He was the guy in there and knows exactly what he did and didn’t touch. He is positive there is no reason for her to not be able to pee. It looks like we are in it for the long haul though. My wife may have to live with her folks in KC for a while because they need to change the dressings at least every other day. In an effort to regain a bit of normalcy for my boy, he and I may bachelor it up at the house for a month or so and see what progress was made. Through all of this I keep telling myself that the good lord did this to us because we are capable both financially and family support wise to handle it. I can’t think of any other reason. Hopefully it kept it from having to happen to anyone else…


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Hang in there T

Praying for your little Angel

Thanks for the updates

bill

 

[356]

Praying for you and the family. If I can serve you or your family, send me a PM, as I am just an hour north of KC and get there frequently.

 

[T-Max]

I appreciate that. I decided to make a trip home to see my boy yesterday morning. As is typical of our luck, the surgeons must have gotten a tip from the nurse about something they didn’t like with our baby’s wound. My wife called and told me they were taking her back into surgery. Naturally I was as far away as I could get. My boy was down for a nap so I turned around and headed straight back and arrived just as the surgeon was getting ready to talk to my wife. It seems another internal stitch had failed and they were worried about starting to lose ground. They took her in, cleaned everything really good, did some exploring to see why things might not be healing quite right and sewed her back up with several layers of stitches basically sewing their way out. She was groggy after the surgery, but doing way better than last time. The surgeon found nothing of concern and suggested it just needed to be pulled together better to make the two sides “stick.” She thinks this one is going to do the trick. This morning baby girl is all smiles and that’s all I could ask for for Father’s Day. I hope all you dads out there get to see/spend time with your kids today. Hold em tight.

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[Mortenson]

Sure thinking about you guys a lot. Thanks for the updates. It doesn't compare at all to what your little cutie is going through, but my daughter Bethany had a little surgery when she was 9 months old. Happy Father's day T-Max.

 

[Brian662]

Happy Father's Day to all you fathers out there!

Our little girl was a "cranio" baby and had her skull restructured when she was 6 months old. That was almost 5 years ago and she's the happiest, strongest kid I know. Shes going to need another cosmetic touch up in a few years but otherwise full recovery. I'm very thankful my boy didn't have to go through that, he's a wimp compared to his younger sister.

 

[T-Max]

Sure thinking about you guys a lot. Thanks for the updates. It doesn't compare at all to what your little cutie is going through, but my daughter Bethany had a little surgery when she was 9 months old. Happy Father's day T-Max.

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Aw, man… Never easy to see a kid like that. Glad things worked out. And I think we are truly headed in the right direction this time. I am familiar with stitches. I was not familiar with the other methods we tried.


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[T-Max]

Happy Father's Day to all you fathers out there!

Our little girl was a "cranio" baby and had her skull restructured when she was 6 months old. That was almost 5 years ago and she's the happiest, strongest kid I know. Shes going to need another cosmetic touch up in a few years but otherwise full recovery. I'm very thankful my boy didn't have to go through that, he's a wimp compared to his younger sister.
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View attachment 65386

Now there is a picture of a fighter! It is incredible what they can do. That looks to have been a huge success!


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[drycreek]

T, I’m just now seeing this. I’m so sorry that this happened to your family, it’s always worse when it’s a child. That beautiful baby girl is going to be fine, and I’m going to send up a prayer right now for your family, the doctors, and that baby in particular, for comfort and for healing. Happy Father’s Day !

 

[hunts_with_stick]

More prayers sent! Stay strong

 

[T-Max]

Jail break!!! Today we got released again! My wife could barely keep up with me leaving! We have a bit of a road ahead of us, but the best healing happens at home. Plus we got our son back. That little shit may have missed us as much as we missed him. We go back in a week for some catheter training. For some reason she won’t pee and they are sure there is nothing they did that would have caused that. If it were more appropriate, I would share the pics of the wound when we got back to the hospital. Fellas, I hope none of you ever have to see your kid like that. I will never, NEVER forget that. For now we will rest and regroup and try to get back into our routine. Thanks for all the continued prayers. They mean so much to us.

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[hunts_with_stick]

The power of prayer!

 

[T-Max]

I thought I should close this out. We had a follow up last week and had 3 permanent stitches removed. The remaining 24 are all dissolvable and should clear up on their own. We are still having problems with peeing so mom and I had to learn how to catheter. The urologist hasn’t put a timetable on return to normal, but the surgeon still insists it should clear up anytime. He is unsure why she is having problems now based on his procedure. Either way, she is well on her way to recovery. Thanks again for all of the continued prayers. There is no doubt they helped her healing and provided comfort to my wife and I. It still seems so crazy that a procedure that was intended to be an overnight stay has turned into a life-altering event. This little girl is a picture of strength. Thanks again, Fellas.

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[Merle Hawggard]

Awesome to hear man. That's one tough kiddo yall have there.

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[hillrunner]

Great news!

 

[buckdeer1]

Great news,Her shirt says it all

 

[roymunson]

That's a great picture. Man, going thru this stuff is no joke. Especially when it's your kids who didn't ask for this.

Praying she keeps gaining ground and you don't have to go back to the hospital again.

 

[bwoods11]

Best of luck to you all and enjoy every minute with her!

 

[T-Max]

This is the actual last post for this thread. The only residual effects we had from the surgery was her inability to fully pee on her own. Well, that has improved dramatically! We were keeping logs and her urine output finally hit 99%. As of this coming Monday we will no longer have to do catheters and our sweet baby is 100% recovered. It’s hard to believe it was just over 2 months ago that we were in the thick of it. It seems like yesterday and years ago all at the same time. Anyhow, we are down to annual blood draws for a few years and god willing those come back good and my baby will never remember any of this. One last huge thank you to the group here. I read back through this thread and it is humbling to see the support we got from the group here. Dare I say this is like a bit of family here, though I have never met most of you. God Bless.

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[tooln]

Will keep praying for her and your family.

 

[Turkey Creek]

So glad to hear that things are going much better for all of you!

I think if you look through the majority of the information on this site you will see a common theme. That family is important to our daily lives. Whether that is family involvement in the activities we do or the thought that we want to improve our farms so that those coming after us can experience some of the great memories that the outdoors typically entails. I would guess that vast majority of us are parents and even grandparents. I am not on a lot of discussion forums, most just really do not have the same feel as this one.