The Chief Surgeon, the one who actually did our daughter’s procedure, came up to visit us today. He is going to personally take back over her treatment plan. We had a nice long talk. He had handed off her care to the surgical clinic and is unhappy with our progress. We have the surgical team suggesting we care for the wound one way which requires her catheter to be in, wound care redressing it and saying urine won’t hurt it, urology suggesting she could have a catheter the rest of her life, etc. He is the kind of guy that makes stuff happen. He is going to get everyone in the same room, actually in the same room and they will come up with a cohesive plan. He is personally going to see it through. It does seem that one of the internal stitches has come loose. I will spare you the details, but during one diaper change earlier this week, I got a perspective of the wound that made me vomit immediately. I’m sure the fact that it was my daughter contributed to that greatly. He suggested to us that what wound care did looks great. He is impressed with what they accomplished here in our room without going back to the OR. He also says her being on a catheter forever is nonsense. He is going to suggest they remove the catheter and simply wait for her to pee. He was the guy in there and knows exactly what he did and didn’t touch. He is positive there is no reason for her to not be able to pee. It looks like we are in it for the long haul though. My wife may have to live with her folks in KC for a while because they need to change the dressings at least every other day. In an effort to regain a bit of normalcy for my boy, he and I may bachelor it up at the house for a month or so and see what progress was made. Through all of this I keep telling myself that the good lord did this to us because we are capable both financially and family support wise to handle it. I can’t think of any other reason. Hopefully it kept it from having to happen to anyone else…
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