If You Are The Praying Type

[Turkey Creek]

Hang in there. I am sure it is taxing in every way .... mentally, emotionally. We have your back to the best of our abilities.

 

[tooln]

Prayers sent. Hang in there.

 

[Brian662]

Sorry to hear about the set back, stay strong for mom and baby!

 

[Foggy47]

Hang in there....better days ahead.

 

[Bill]

read this while driving earlier today. prayed right there in the car. Hoping for the best.

 

[momark]

So sorry you guys are having to go through all of this. Hopefully she will get better soon and you guys can relax a little. Praying for you all in the name of JESUS

 

[Bill Loser]

No matter what, always remember how blessed you are to have a strong wife and and amazingly strong daughter.

 

[roymunson]

This kid's an overcomer. Praying God's peace on you guys and for a quick recovery/healing.

Some day when she's 15 and cops an attitude, you'll just grin and be grateful she is able to do that.

Keep pressing on!

 

[GMan5465]

Prayers for the doctors to have the wisdom to get her on the mend.

 

[Wind Gypsy]

This one hits in the feels enough that I didn't want to keep reading early on..

Keep on keeping on T! Hoping you can end this thread soon with happy healthy strong daughter news!

 

[T-Max]

The Chief Surgeon, the one who actually did our daughter’s procedure, came up to visit us today. He is going to personally take back over her treatment plan. We had a nice long talk. He had handed off her care to the surgical clinic and is unhappy with our progress. We have the surgical team suggesting we care for the wound one way which requires her catheter to be in, wound care redressing it and saying urine won’t hurt it, urology suggesting she could have a catheter the rest of her life, etc. He is the kind of guy that makes stuff happen. He is going to get everyone in the same room, actually in the same room and they will come up with a cohesive plan. He is personally going to see it through. It does seem that one of the internal stitches has come loose. I will spare you the details, but during one diaper change earlier this week, I got a perspective of the wound that made me vomit immediately. I’m sure the fact that it was my daughter contributed to that greatly. He suggested to us that what wound care did looks great. He is impressed with what they accomplished here in our room without going back to the OR. He also says her being on a catheter forever is nonsense. He is going to suggest they remove the catheter and simply wait for her to pee. He was the guy in there and knows exactly what he did and didn’t touch. He is positive there is no reason for her to not be able to pee. It looks like we are in it for the long haul though. My wife may have to live with her folks in KC for a while because they need to change the dressings at least every other day. In an effort to regain a bit of normalcy for my boy, he and I may bachelor it up at the house for a month or so and see what progress was made. Through all of this I keep telling myself that the good lord did this to us because we are capable both financially and family support wise to handle it. I can’t think of any other reason. Hopefully it kept it from having to happen to anyone else…


Sent from my iPhone using Tapatalk

 

[chucker66]

We keep praying for you and your family. Sometimes bad things happen to good people but the good Lord never seems to give us more than we can handle. Good luck

Chuck

 

[TreeDaddy]

The Chief Surgeon, the one who actually did our daughter’s procedure, came up to visit us today. He is going to personally take back over her treatment plan. We had a nice long talk. He had handed off her care to the surgical clinic and is unhappy with our progress. We have the surgical team suggesting we care for the wound one way which requires her catheter to be in, wound care redressing it and saying urine won’t hurt it, urology suggesting she could have a catheter the rest of her life, etc. He is the kind of guy that makes stuff happen. He is going to get everyone in the same room, actually in the same room and they will come up with a cohesive plan. He is personally going to see it through. It does seem that one of the internal stitches has come loose. I will spare you the details, but during one diaper change earlier this week, I got a perspective of the wound that made me vomit immediately. I’m sure the fact that it was my daughter contributed to that greatly. He suggested to us that what wound care did looks great. He is impressed with what they accomplished here in our room without going back to the OR. He also says her being on a catheter forever is nonsense. He is going to suggest they remove the catheter and simply wait for her to pee. He was the guy in there and knows exactly what he did and didn’t touch. He is positive there is no reason for her to not be able to pee. It looks like we are in it for the long haul though. My wife may have to live with her folks in KC for a while because they need to change the dressings at least every other day. In an effort to regain a bit of normalcy for my boy, he and I may bachelor it up at the house for a month or so and see what progress was made. Through all of this I keep telling myself that the good lord did this to us because we are capable both financially and family support wise to handle it. I can’t think of any other reason. Hopefully it kept it from having to happen to anyone else…


Sent from my iPhone using Tapatalk

Hang in there T

Praying for your little Angel

Thanks for the updates

bill

 

[356]

Praying for you and the family. If I can serve you or your family, send me a PM, as I am just an hour north of KC and get there frequently.

 

[Mortenson]

Sure thinking about you guys a lot. Thanks for the updates. It doesn't compare at all to what your little cutie is going through, but my daughter Bethany had a little surgery when she was 9 months old. Happy Father's day T-Max.

 

[Brian662]

Happy Father's Day to all you fathers out there!

Our little girl was a "cranio" baby and had her skull restructured when she was 6 months old. That was almost 5 years ago and she's the happiest, strongest kid I know. Shes going to need another cosmetic touch up in a few years but otherwise full recovery. I'm very thankful my boy didn't have to go through that, he's a wimp compared to his younger sister.

 

[T-Max]

Sure thinking about you guys a lot. Thanks for the updates. It doesn't compare at all to what your little cutie is going through, but my daughter Bethany had a little surgery when she was 9 months old. Happy Father's day T-Max.

View attachment 65383

Aw, man… Never easy to see a kid like that. Glad things worked out. And I think we are truly headed in the right direction this time. I am familiar with stitches. I was not familiar with the other methods we tried.


Sent from my iPhone using Tapatalk

 

[T-Max]

Happy Father's Day to all you fathers out there!

Our little girl was a "cranio" baby and had her skull restructured when she was 6 months old. That was almost 5 years ago and she's the happiest, strongest kid I know. Shes going to need another cosmetic touch up in a few years but otherwise full recovery. I'm very thankful my boy didn't have to go through that, he's a wimp compared to his younger sister.
View attachment 65384
View attachment 65386

Now there is a picture of a fighter! It is incredible what they can do. That looks to have been a huge success!


Sent from my iPhone using Tapatalk

 

[drycreek]

T, I’m just now seeing this. I’m so sorry that this happened to your family, it’s always worse when it’s a child. That beautiful baby girl is going to be fine, and I’m going to send up a prayer right now for your family, the doctors, and that baby in particular, for comfort and for healing. Happy Father’s Day !

 

[hunts_with_stick]

More prayers sent! Stay strong