I was diagnosed with Rheumatoid Arthritis in 2012. My wife began an extensive search understand the cause of R.A.
She found a book titled "The Road Back" written in 1988 by Dr Thomas Brown. He was convinced that RA was caused by pathogens exactly like you describe, Jack. He believed RA could be successfully treated with long-term antibiotic dosage. However, most Rheumatologists think that is hogwash. We tried to find a doctor that would prescribe the antibiotics...no luck.
Like I said earlier, Lyme disease can mimic over 300 diseases which can be almost impossible to diagnose.
I believe that there are a lot of sick people that have been misdiagnosed as having other diseases.
SW. Pa.
When I first had the issue and did some research, they had made no correlation between Rheumatoid arthritis and pathogens that I could find. However there was an entire class of arthritis that they thought was somehow related to pathogen reactions. Interesting that some now think that extends to RA. Most of the time, folks outside the mainstream of medicine end up being heretics, but there are always a few that with hindsight, folks now recognize were prophets.
As for my personal experience, when it first hit me, I was walking around like an 80 year old man barely making it from bench to bench in the mall as my wife would shop. I ended up on a long-term course of minocycline. After a month or so, I was back to my old self playing competitive basketball and other sports again. After a year or so, my Rheumatologist thought he saw the beginnings of a pigmentation change in my skin and decided to take me off of it. Within two weeks, significant symptoms returned. After 6 months, I convinced him to put me back on it. He did, but it was completely ineffective the second time. While the chronic symptoms are not as bad as the acute period, I've been managing the symptoms ever since. Fortunately, I have not gone beyond NSAIDs yet to immunosuppressive drugs.
So, what happened? Did taking me off the minocycline allow the pathogen to mutate to become resistant? Was it simply the anti-inflammatory effect of the minocycline that relieving symptoms during that period? Was the sharp decline in symptoms after going on minocycline followed by the return after I got off, simply coincidental with a natural wave in the disease? I'll probably never know.
One thing I'm sure of is that there is an autoimmune component to the disease. Every time I now get a common bacterial infection of any type, I get increased arthritic symptoms a week or so before the bacterial infection becomes apparent.
Hope things go well with your RA!
Jack